Epilepsy Action is a charity united through one common goal - to improve the lives of everyone affected by epilepsy. Epilepsy is one of the most common neurological conditions in the world and affects around 600,000 people in the UK - almost 1 in 100. People with epilepsy have a tendency to experience seizures, and the condition can start at any age. There are also many different types of epilepsy, some of which may last for a limited time with seizures eventually stopping. However for many people, epilepsy is a lifelong condition most commonly treated with medication.
Epilepsy Action wants to make a difference in the lives of people living with epilepsy. They work towards better quality healthcare and treatments as well as increased awareness of the condition so that those with it are able to access the right support to manage their illness, as well as ensure they are treated fairly and with respect.
What Do Epilepsy Action Do?
There are many ways in which Epilepsy Action works towards their goals. This ranges from providing expert information and support to campaigning for positive change.
Information & Advice
The Epilepsy Action Helpline has trained advisers who are there to provide confidential and personal support to anyone who needs it, as well as to answer any questions. The charity also provides a wide range of expert resources in the form of books, leaflets and online learning to educate people on the condition. There are resources available for sufferers themselves, as well as for carers, support staff and schools.
Epilepsy Action also allows individuals to connect with others living with the condition through a network of local branches and their coffee and chat groups. They also have a network of local volunteers who run epilepsy awareness sessions and information days to organisations. The charity also has an online community allowing people to chat to others affected by epilepsy, in the form of their forum and their Facebook community.
In a 2019 study carried out by Epilepsy Action and Bangor University, it was found that 10 in 100 people had a negative attitude towards people with the condition. Wanting to change public attitudes towards people with epilepsy, the charity runs a number of awareness campaigns to bring about better understanding and a society where those with the condition are treated with respect. Recent campaigns include:
Working with employers and the government to reduce prejudice around employees with epilepsy, and to implement better support measures for them.
Involvement in the debate around cannabis based medications for people with epilepsy, working to ensure those who would benefit from these treatments are able to access them safely.
The 2019 Neuro Pledge Campaign, which works to raise issues affecting people with epilepsy and other neurological conditions in Parliament.
Research & Support for Professionals
Epilepsy Action also funds research studies and opportunities for patients and the public to get involved. These studies look into causes of epilepsy and the issues facing patients with it, and into new treatments with the long term goal of someday finding a cure for the condition. They also provide a range of up to date and high quality information on epilepsy to inform and keep professionals up to date with the latest treatments and developments.
How You Can Help
This May, Epilepsy Action are one of our four charities taking part in our monthly poll in a bid to win 20% of our profits. You can help them continue providing their vital services to everyone affected by epilepsy by casting your vote today. Thank you!
To find out more about Epilepsy Action, the work they do, and how you can donate, visit their website.