Most people, including healthcare professionals, will have never heard of neuroblastoma until they come across it. The disease affects around 400 children in the UK at any one time, with 100 newly diagnosed cases each year. It specifically targets children; the most common age of diagnosis is just 19 months old. Half of new cases will immediately be classified as high-risk.
Treatment consists of prolonged and aggressive therapies including chemotherapy, radiotherapy, immunotherapy and stem cell transplants, which carry their own life-threatening side effects. Even after enduring these treatments, over 30% of children will relapse within five years, and of these children only 1 in 10 will survive.
Often, the hope of a cure for children lays in clinical trials in the UK and abroad. These trials are not NHS funded and so families face the seemingly impossible task of raising hundreds of thousands of pounds to give their child the best chance at life.
This is why Solving Kids’ Cancer exists. They support children and their families through the hardships that come with this devastating disease and give children the chance to beat neuroblastoma.
How They Fight Neuroblastoma:
- They provide specialised information and guidance on treatments, clinical trials and research to empower families to make informed decisions
- They fundraise to ensure children can access pioneering treatment abroad
- Their Family Coordinator is an active aid in the logistics of accessing treatment, from negotiating treatment costs to booking flights and providing an anchor for families they need support throughout their cancer journey
- They advocate and lobby to make childhood cancer a priority. Currently there are over 50 times more cancer drugs approved for adults than for children. This needs to change.
For more information, visit their website: https://solvingkidscancer.org.uk/